Psoriasis is one of the most common, chronic and repetitive skin disease that occurs in both men and women (Basinska 365).This disease can develop at any age, but it often occurs in patients under the age of 40 years of age which it’s often called type 1 psoriasis (Jankowiak 87). My cousin Grace has been going through this for 6 years now, since she was 26 years old. It has been a roller coaster for her psychological and dealing with her symptoms. Psoriasis is classified the second most destructive disease which it act in accordance to depression (Jankowiak 88). Depression has been a big factor to Grace, it has made the outbreak worse for her. She has been hiding behind her clothes and even her home. Being socially excluded by others judgement and rejection causes patients with psoriasis to avoid social contact. The research demonstrates that being satisfied with life is decided by personal qualities, character and accepting the condition (Basinska 366). It has been difficult for my cousin Grace to truly accept her condition especially because of the looks she gets when she is out in public. Psoriasis patients have proclaimed that this condition has multiple psychosocial effects such as social detachment, sense of anger, depression, shame and anxiety (Jung et al. 2). Stress also applies a bigger influence on the psychological characteristics of health-related quality of life in women than men (5).
Shame is one of the most announced emotions by women and patients that have dealt with this condition for a long period of time (Sampogna et al. 301). Grace has kept herself away from the family especially myself since we grew up very close practically like sisters. It has broke her down psychologically and because of that it has changed her completely. Studies analysed psychosocial characteristics and anger was the most common feeling that patients with psoriasis deal with often (Sampogna et al. 301). Grace has been so short tempered and angry lately. It is important for me to understand my cousin and what she is going through, to see if my family and I could make it easier for her. Not having support and comprehension of their condition from their families and friends can lead to depression (Jankowiak 88). Claim and emotion of anger is a personality characteristic that most of the time affect the patient’s ability to manage with stress (Sampogna et al. 301). Worrying plays a huge role in emotional aspect of mental well being which it is related to psoriasis (301). This emotional effects and determines patients treatment outcomes.
Patients with psoriasis like my cousin Grace, have difficulty accessing more expensive and effective treatment options, that can lead to low quality of life. It is why patients job assurance is influence on their disease severity, as it could minimize the capacity to work and can lead to early retirement (Jung et al. 5). These issues create a negative impact on their work environment which in the long run will create productivity impairment that can have financial consequences and will enable lifetime earnings (Sampogna et al. 301). Grace has struggled with her work environment since she had to deal with her condition. She gets lots of rejection from coworker that think her condition is contagious so they tend to stay away from her. There has been times where she has missed work because it is to painful for her to move her joints when she walks. This has caused her decrease in wages and unable to afford her medication and because of that she tend to break out more.
Psoriasis has taken a toll on Grace physically. She has about 60% of her body covered with psoriasis and because of this it has caused social rejection in her life. Social rejection because of their image can worsen patients symptoms and causes psychosocial inconsistency(Basinska 8). It is said that itching and peeling of the skin is the most harmful psoriasis symptom (Jankowiak 87). These symptoms have cause Grace to isolate herself from family, friends and social life. The more she breaks out, the more it hurts her to walk and move her arms. It has become a concern about Psoriasis getting on her neck due to it being difficult to cover from others. As it is, she hides behind her clothes no matter what the weather is like. The National Psoriasis Foundation performed a survey that indicated living with psoriasis could be more damaging than other chronic conditions such as coronary heart disease and chronic obstructive pulmonary disease (COPD) (Jankowiak 88). Bilac et al. found that psoriatic patients had 96.6% inching, 36.8% hurting, 56.3% burning, 16.1% in pain, 42.5% sensitiveness, 49.4% bleeding , 56.3% exudation, 14.9% weakness, 11.5% being bothered by contact with water and 21.8% sleeplessness. Sampogna et al. reported that the frequency of these symptoms was higher in women than men (3,4). Grace deals with most of these symptoms which it has taken a toll on her physically for the past 6 years. These disease caused her to lose her marriage because her exhusband lost physical attraction towards her which made her to go on depression and it affected her condition tremendously. She also lost confidence and caused her lots of embarrassment with her condition.
Understanding these patients condition can help them accept and manage their lives with psoriasis. It is very important to not judge a book by its cover. Society needs to have more knowledge about the situation instead of rejecting someone because of their appearance. Rejection is one of the most leading cause to isolation and depression. These patients are already trying to deal with their condition as it is, they don’t need society to put them more down. I know my cousin Grace just like other patients with psoriasis need all the support from their families and society and to comprehend their condition so it wouldn’t cause a burden in their lives. I hope someday there could be a change in the way we look at other people with conditions.
Jankowiak, Barbara, et al. “Satisfaction with Life in a Group of Psoriasis Patients.” Advances in Dermatology & Allergology / Postepy Dermatologii i Alergologii, vol. 30, no. 2, Mar. 2013, pp. 85–90. EBSCOhost,doi:10.5114/pdia.2013.34156. http://search.ebscohost.com/login.aspx?direct=true&db=a9h&AN=91533031&site=ehost-live
This article discusses about the rejection and poor quality of life that patients with psoriasis have and because of this they go in depression. This tends to affect patients social and sexual life. I will use this source to understand better the quality of life that this patients with psoriasis are having. Academic journal.
Jung, Sungwon, et al. “The Association of Socioeconomic and Clinical Characteristics with Health-Related Quality of Life in Patients with Psoriasis: A Cross-Sectional Study.” Health & Quality of Life Outcomes, vol. 16, no. 1, Sept. 2018, p. N.PAG. EBSCOhost, doi:10.1186/s12955-018-1007-7. http://search.ebscohost.com/login.aspx?direct=true&db=a9h&AN=131764531&site=ehost-live
This article talks about several psychosocial consequences that most patients deal with having psoriasis. It affects so much that they isolate themself, their always feeling angry, depressed, shame and even anxiety. I will use this information to specify the several psychosocial variations that these patient suffer on the daily bases. Academic journal.
Basińska, Małgorzata A., and Marta Drozdowska. “Emotional Intelligence as an Indicator of Satisfaction with Life of Patients with Psoriasis.” Advances in Dermatology & Allergology / Postepy Dermatologii i Alergologii, vol. 30, no. 6, Dec. 2013, pp. 365–372. EBSCOhost, doi:10.5114/pdia.2013.39435. http://search.ebscohost.com/login.aspx?direct=true&db=a9h&AN=94073615&site=ehost-live
This article lectures about the association between emotional and satisfaction with life in patients with psoriasis. Stress seems to be one of the main factors that controls the appearances of psoriasis changes. I will use this information to point out two different aspects that patients with psoriasis struggle with on the daily basis, emotional and satisfaction with life. Academic journal.
Sampogna, Francesca, et al. “Living with Psoriasis: Prevalence of Shame, Anger, Worry, and Problems in Daily Activities and Social Life.” Acta Dermato-Venereologica, vol. 92, no. 3, May 2012, pp. 299–303. EBSCOhost, doi:10.2340/00015555-1273. http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=77789293&site=ehost-live
The article breaks down different areas that patients with psoriasis deal with psychological. Social and rejection are one of the most that affect patient with psoriasis. I will be using this source to discuss different areas pyschological that women go through having psoriasis. Academic journal.
Bilaç, Cemal, et al. “The Relationship between Symptoms and Patient Characteristics among Psoriasis Patients.” Indian Journal of Dermatology, Venereology & Leprology, vol. 75, no. 5, Sept. 2009, p. 560. EBSCOhost, doi:10.4103/0378-6323.55426. http://search.ebscohost.com/login.aspx?direct=true&db=aph&AN=44321759&site=ehost-live
In this article they focus on the most common symptom that patients with psoriasis suffer from is pruritus. This symptoms comes with pain, burning and bleeding most of the time depending on the severity. I will be using this information to point out another different aspect of the type of quality of life that most patients with psoriasis deal with often. Academic journal.
Moncada, Grace. Personal interview. 5 October 2018.